BFRB Precision Medicine Initiative

Posted: October 11, 2016 in Resources
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This is so exciting!

 

There’s not a cure for Trichotillomania, we all know this, and though an estimated 1 to 3 percent of the population has it not a lot of research has been done to determine how and why it starts and thus how to manage and even prevent and cure it. It’s extremely frustrating to have this disorder and to be told that you’re not alone only to find out that there are very few psychological specialists who you can turn to for answers. It’s more common than we used to believe, and yet there is a huge gap between people who suffer from TTM and people who can help the sufferers of TTM.

But the people involved with the Body Focused Repetitive Behavior (BFRB) Precision Medicine Initiative are hoping to change that.

From an article published at wbur.org:

“The initiative aims to increase remission rates in hair pullers from the current 10-20 percent to 70 percent in the course of seven years. It brings together researchers at 20-plus institutions, including Massachusetts General Hospital and the University of Chicago, in an effort to increase understanding of the disorders and improve treatment.”

Download the case statement

The doctors are in the process of analyzing behavioral and genetic patterns from hundreds of TTM patients to create several BFRD profiles. These profiles will help to identify new, more personalized treatment.

Part of the difficulty with treating TTM is the difference people each person who has it. Everyone who has ever walked the Earth has a different genetic profile and different behavioral influences etc., it is impossible to create a “one size fits all” treatment.

But this is huge step toward getting some specialized treatment! This is such a renewed hope for me! There are people who care!

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